DR. JOANNE GERENSER: Hi. My name's Joanne Gerenser. And I'll be the instructor for this course. I want to go over some things, before we get started, that will, I think, be important for you to think about and help you be more successful in the class.
So, with each of the segments, there'll be articles that you'll have attached and that you should take the time to read. They're going to give you a lot more detail than I will give you in the actual lectures. You should take the time to print out the PowerPoint handouts so that you can take notes while you listen to me ramble on because there will be quizzes periodically throughout the segments. And there'll be a final so it'll be helpful for you to go beyond the simple PowerPoints and take some notes.
There are video segments that will be embedded throughout. And you should make sure that you take the time to watch them. Some of them are YouTube examples. And some of them are examples from children in my program.
There are activities that are going to be located at the bottom of the videos, at different sections, at the end of the lesson or throughout the videos. Take the time to do them. They're going to help you be more prepared to take the final exam. They'll help you to evaluate whether or not you really understood what I talked about during the course of the lesson.
There's a discussion forum. Read it and participate in it. Try and do it daily because it will make the difference in the class, as far as I'm concerned. You can sit and watch the videos and take your notes and read the articles. But if you really want an interactive class, take the time to participate in the discussion forum.
And again, some of it is required. So make sure you read all of the requirements. And then, at the end of each lesson, there'll be an assignment so make sure you complete the assignments. There are very clear objectives that I want to accomplish in this first lesson. So I'm just going to review them for you. And you'll see at the beginning of every lesson, I'll go through these objectives.
In this lesson, we're going to talk about the DSM-4R. And the reason I include the DSM-4R is because we're still working with it. There are still families out there who have children that have been diagnosed with the DSM-4R.
You're still going to be working with kids who have an Asperger's classification. And so you have to understand it. In time, it will start to dissipate and we'll be working only with the DSM-5. But it's important for those of us working now in the field that we understand the DSM-4R and the DSM-5.
I want to go over why we shifted to the DSM-5 and what were some of the reasons why we moved to the DSM-5. And then, obviously, I want to talk about what the DSM-5 did. What were the changes? I want to review the qualitative differences between people with autism and other developmentally disabled people.
I think it's important, when you're working with kids with autism, that you understand as much as you can about what makes them different. Every kid with autism is going to be different so you're going to be challenged every time you work with a child, which is what I find so fascinating and interesting but also challenging because there isn't a road map or a blueprint that will allow us to navigate each child we work with.
So the more you take the time to understand autism and understand how we think they're processing the environment and what are their unique learning characteristics, the better equipped you'll be able to be to solve problems as they come along. I'll talk about the unique specific speech and language characteristics that are consistent for children with autism.
After completing this lesson, you should be able to
DR. JOANNE GERENSER: So let's talk about the DSM-IV-R. The DSM-IV-R, which was used for many, many years, took as its umbrella title, the pervasive developmental disorders. Under the pervasive developmental disorders are five specific diagnostic categories. There's autism or autistic disorder, Aspergers disorder, pervasive developmental disorder not otherwise specified, Rett's disorder, and childhood disintegrative disorder, which I'll talk about a few minutes.
But basically, what they did when they looked at these disorders, they said there's got to be three areas that are impacted in order for you to fall under the pervasive developmental disorders. Those three areas include qualitative problems in social skills, qualitative problems in communication, and issues with repetitive or stereotypic behaviors. And they're typically manifested within the first three years of life. And you may see other conditions there, but they're secondary to autism.
So the diagnostical statistical manual is what diagnosticians use to evaluate and diagnose, and it contains all of the different psychiatric conditions. And it also contains the pervasive developmental disorders, of which I'll get into more detail.
So prior to 2013, which is when we introduce the DSM-5, the DSM-IV-R had the following conditions which I already mentioned, autism, Aspergers, et cetera. And so what I want to spend just a few minutes talking about is what that diagnostic criteria involved, because then you'll understand better what the changes were to the DSM-5.
So the diagnostic criteria for the DSM-IV-R basically said that you have to have a total of six symptoms and it had to be divided across the three what we call triad, the three primary areas. But they could be broken up in any different way, which is why if you add the math up, there are probably hundreds of different combinations of symptoms.
And for autism, the first diagnostic category, autistic disorder, these are the symptoms for social interaction. And I'm not going to go through each of them individually, but you can see they range from something like lack of social emotional reciprocity, which means if I smile at you, you don't smile back at me, all the way up to just not using eye contact or not being able to make friends. Right? And so you have to have some symptom within that area.
You have to have at least one symptom in the area of communication, and again, varies widely. Could be something like completely nonverbal, lack of any development of spoken language, all the way up to you use spoken language but you're not using it a very social way, or you're not using it to pretend. And you know, it's interesting when you look at the diagnostic categories or criteria that I'm describing now in the DSM-IV-R, look at these and then in the next section when we talk about the DSM-5, see how much more specific they got. See how much more descriptive they got, because the problem was that there was just too much variation.
The restrictive and repetitive behavior, of which you needed one symptom, here are the basic range of symptoms. And again, they can range from something like I'm preoccupied with a topic, all the way up to the very rudimentary behaviors that we associate with general classic autism, which would be the hand-flapping and the rocking. And all you need is one of those symptoms.
Some of the other things is that it has to be developed prior to the age of three, and it's not better accounted for by some of the other diagnostic categories. When you look at the diagnostic category for Aspergers disorder, again, the symptoms are the same. You have to have at least two symptoms in the area of social interaction. Those symptoms are exactly the same as you would see in autistic disorder.
And the same thing is true for the repetitive and restricted behaviors. You have to have at least one symptom there. Now what's different, what differentiates Aspergers disorder from autism, is that there is no clinical significant delay in language or in cognitive functioning. But to be honest, that's not a requirement for autism either. So this was a real issue. This is one of the factors that led to the development of the DSM-5 in terms of the changes in autism, because there was just too much gray area. There was too much overlap in the two diagnostic criteria.
A couple days ago, a mom came up to me and asked me-- I'd worked with her son when he was two and three up until he was about six or seven and then he went to a regular education school. And today he's actually graduated high school and he's going to start college in the fall of next year. And she was talking to me and saying how great he's doing. And she said, you know Joanne, people ask me all the time whether my son has Aspergers, which is what I've been using, or high-functioning autism. I want to know what you think. And I said frankly, I think he has high-functioning autism.
But honestly I have no idea. And the only reason I say that I thought he had high-functioning autism is because he had autism, he was diagnosed with autism at two. He clearly had autism at two. He did not have Aspergers. He was nonverbal until he was four. So he had autism. And in theory, you're not supposed to move through the diagnostic categories. Right? They're supposed to be mutually exclusive. So the fact but you could do that is one of the problems with the diagnostic categories.
Now in the DSM-IV-R, Rett's disorder was there. And with Rett's disorder, there were many differences between the other pervasive developmental disorders. So for example, it afflicted primarily only girls, which is very inconsistent with the autism spectrum disorders. There was clear regression. You saw a deceleration, for example, of head growth. A loss of previously acquired skills. A lot of hand-wringing behavior, de-generation in their gait, in their motor control. And it was very, very different from the other disorders, which is why when we talk about the DSM-5, you'll see that they took it out.
Childhood disintegrative disorder is also very different from the other pervasive developmental disorders in that there also is clear loss of skills. So in childhood disintegrative disorder, there's a period of normal development, typically, for at least two, maybe three years. And then there's a loss, a clinically significant loss of skills.
So kids can lose their ability to be toilet trained. They can lose their ability to talk. They can be talking in full sentences at two and a half and at five be completely nonverbal. Again, it's a loss of skills. It's not very common thankfully. You can imagine how tragic it is to have your child be three years old talking, and then systematically lose all these skills. And it is not better accounted for by any of the other pervasive developmental disorders.
The last diagnostic category in the DSM-IV-R is PDD-NOS, which stands for pervasive developmental disorder not otherwise specified, which I find to be probably the most ridiculous of all the diagnostic categories, because basically it says, use this category if you're not sure. I mean that's kind of what it says. Use this category if the child looks like he has some autism-like behaviors but doesn't quite meet the criteria for autism. So it was a real catch-all. A lot of kids were diagnosed with PDD-NOS, and then later re-diagnosed as having autism or Aspergers. And I think it's because diagnosticians just decided, you know what, I'm not going to use the term autism. Let it be somebody else who calls the kid autistic.
And so it's another factor that led to the development and the changes that you see in the DSM-5. So this is just a summary here of the disorder of the diagnostic category on the left-hand side and all the way through. And again, the primary domains that are affected in all of them are social communication and restricted and repetitive behavior. And what you're going to see is that there's just a tremendous amount of overlap, particularly in autism and pervasive developmental disorder and Aspergers, which we refer to essentially, as the autism spectrum disorders. And when we get to the DSM-5 you'll see that Rett's disorder and childhood disintegrative disorder have been removed, because they're very, very different.
If you take a few minutes to watch this video, you'll see it's about a diagnostician discussing how he goes about diagnosing autism and looking at the early signs of autism.
DR. JOANNE GERENSER: OK. So let's now talk about the DSM-5. The DSM-5 was launched in 2013 after many, many years of work on it. The reason that we needed to move to the DSM-5 was that researchers found that the diagnostic criteria were not being applied consistently across the country, or for that matter, across other countries that also use the DSM.
In some cases, a child might get four different diagnoses from four different clinicians. And so they felt that they really needed to clean this up, because we were not being very consistent and it was having a major impact on things like access to treatment or doing research.
So there are two basic fundamental changes, I mean, there are many, many changes, but two fundamental ones. The first is that it collapsed all of the five diagnostic criteria into one. And so it now has just one diagnostic criteria called autism spectrum disorders.
And the second thing that it did was it took the three domains-- so if you remember in the DSM-IV, there was social, communication, and repetitive behavior-- and it collapsed it into two. So it took the social and communication and turned it into one category called social communication disorder. And then it maintained the repetitive behavior.
The thinking was that in reality, the language disorder in and of itself wasn't really reflective of autism. It was the way that individuals used their language in a non-social way, or in a stereotypical way, that was more consistent with an autism spectrum diagnosis.
And so the diagnostic criteria again, did maintain a certain set of rules that diagnosticians would use. So there were persistent deficits in social communication that couldn't be accounted for by simple developmental delays. And so again. I'm not going to go through each of these individual categories, but what you can do is, you'll look and see that there's an A and a B. The A is the social communication disorders, and the B is the repetitive behavior criteria.
And you'll look and see that there's a list of symptoms that the diagnosticians would look for, reduced sharing of affect, poor social imitation, failure for back and forth conversations. You're going to take a look and you're going to see that they're somewhat collapsed and they're far more detailed. I mean, the idea is that the more detail you can give a diagnostician, hopefully the more accurate they can be in their diagnoses.
So in addition to the social piece, there is the non-verbal communication. But again, four social interactions. So problems with prosody in pitch, which we'll talk again later in the lecture, difficulty understanding gestures or body postures, failure to have social relationships, lack of theory of mind, lack of perspective-taking. And again, if you compare the DSM-IV-R to the DSM-5, you're going to see that it's far more specific, that they get into much more detail about what these symptoms should look like.
In the B, which is the repetitive behavior, you need to have at least two of the symptoms. And again, you'll see that it's B1 all the way through B4, and you need to have two of these. So again it's repetitive speech, it could be repetitive use of objects, it could be adherence to rules to the point that it interferes, restrictive food repertoires, fixated interests. You'll see, without being too repetitive, that it gets far more specific. It gets into the hyper or hypo-sensitive responses to sensory stimulation. Fixations on lights, this is where you're going to see a little bit more of the stereotypical repetitive behaviors that we would often refer to as stemming.
Again, the symptoms have to be present in early childhood, but they may not actually demonstrate themselves until later. You might not actually identify them until later. And D is really important, it's that they must together impair everyday functioning without supports. So if the individual doesn't have supports, is this individual having impairments in their ability to function every day?
Now the other addition to the DSM-5 is this addition of specifiers. So you will specify whether or not the individual has intellectual impairment or not, whether they have language impairment or not, and whether they have medical or genetic impairment or not. As you can see, particularly for those of you who read the literature or do research, this is the kind of information that's going to be very important so that we can start to understand well, who are we really looking at. How are we clustering these individuals on the spectrum? Because some individuals with autism have mental retardation, some don't. Some have significant language deficits, some don't. Some have known genetic disorder, some don't. So we're starting to develop a system that will allow us to create these subgroups.
So now we've got the two symptoms rather three, we've got the addition of the specifiers. And the last thing that we've added to this new DSM-5 are severity levels. So here we get into how impaired is the individual. Because remember, we've taken Aspergers disorder and lumped it together with autism. So we now have only one diagnostic category called autism spectrum disorders. And in that, you're going to have somebody with profound mental retardation and autism and somebody with an IQ of 150 and autism.
So somehow we have to identify those individuals. So we do that by using the specifiers and the severity levels. So for example, severity Level 3 is somebody who's significantly involved, somebody who requires significant-- and they define it as very substantial support-- and again, they go through this with giving you very clear examples. So it may be severe deficits in verbal and non-verbal communication. It may be somebody who's completely non-verbal. And they give you examples if you're the diagnostician.
They also talk about the repetitive behaviors. And again, requiring very substantial support. Somebody who has a meltdown or severe tantrum if their environment is changed. Somebody who engages in high rates of self-stimulatory behavior. So they give you these examples.
Level 2 is somebody who requires substantial support. Again, I suspect that the levels is where you're going to start having some blurring. You know, what is the difference between very substantial support and substantial support? So I think this is going to take some work for diagnosticians to get fluent at being able to discriminate somebody from Level 2 to Level 3, but they try and give you examples so that you can discriminate these.
Again, they talk about it both in the areas of social communication and the behaviors. And then there's Level 1. These are individuals who require support. But it could be minimal support. But without the support, they'll demonstrate problems. And so they go through examples of this. This is where you're going to see the individuals who previously were diagnosed as high-functioning autism or Aspergers disorder.
And remember, in the DSM-IV-R, there was no such thing as high-functioning autism. So this level differentiation provides us with the ability to be able to discriminate between somebody with Aspergers disorder, who will now be a Level 1 autism spectrum disorder. And it goes through the symptomatology.
Now what's challenging is the DSM-5 has added a new diagnostic category called social communication disorder. Some refer to it as social pragmatic communication disorder. And this is going to be, I think, something that will evolve over time. What this category is, is for individuals who have social communication disorders but do not have restrictive repetitive behaviors, do not have restricted interests.
So I have a young man for example, who works with me, who has a lot of anxiety, has some social communication disorders, but really doesn't have fixed interest. He doesn't obsess on topics. He doesn't perseverate. And he probably today, would fall under the social communication disorder. Previously he was diagnosed as Aspergers disorder.
There are some who don't believe that there's sufficient differentiation to actually have this diagnostic category. Some believe that this will become the new pervasive developmental disorder. So we're going to have to just see how this plays out.
So you should take the quiz that's at the bottom of this video and it'll sort of test how well you understood the information that was presented in this video.
DR. JOANNE GERENSER: So now what we're going to do is we're going to talk about what the qualitative differences are. What differentiates a person with autism spectrum disorder from somebody who just has mental retardation, or is just developmentally delayed but not on the spectrum.
So to begin with, we'll kind of go through these the areas of language, communication, socialization, repetitive behavior. The first on this list, I think, is one of the most clearly differential, and that's this lack of communicative intent. So if you think about kids who don't talk-- so let's say you're dealing with two three-year-olds and both of them are nonverbal-- but one of them is deaf and that's why he's nonverbal. And one of them is artistic and that's why he's nonverbal. The difference between the two is that the individual who has autism will lack communicative intent. Meaning he won't try to accommodate for his lack of speech.
If you watch a child who's deaf, who's not talking, he will be gesturing and communicating. He compensates for the fact that he's not speaking. And so this lack of communicative intent makes people with autism so challenging to work with.
Another interesting differentiation is that many individuals on the spectrum may actually have better expressive speech than receptive speech. That's very, very unusual to be better at the expressive side than the receptive side. The repetitive or stereotypic use of speech is also quite qualitatively unique. And then this notion that they have this sort of-- some would describe it as robotic speech, some might describe it as pedantic. So it's on both ends. They're overly formal or they're very robotic, meaning they have difficulty with their use of suprasegmental aspects of speech.
If you take a look at this video, you'll see a couple of kids from my program. And if you just listen to the different ways in which they're speaking, you'll hear what I'm talking about.
Some of the other areas that I think are quite differential is this lack of abstract language. So they're very concrete, many of them, in their ability to understand. Somebody just was telling me this story which I thought was great, where her son is in college now, and she lives in southern California. And her son is in northern California up in San Francisco. And she knew he was out of money, out of food money, and it was it finals week. So she called him and she said I'm going to order pizza for you to your dorm. And so he called about an hour later and he said you know I know it's not here yet but how long do you think it's going to take to come from Los Angeles.
So here is in college, getting a college degree, but thinking that she actually called the Domino's in Los Angeles to deliver a pizza to the Domino's in San Francisco, not really understanding that there's actually a Domino's about 10 minutes from his house, or from his dorm.
So it's this sort of, it's not consistent with their IQ, this concreteness. These conversation deficits that you're going to see, echolalia is another very unique component of the language impairments in people with autism, so this repetitive speech where they'll actually repeat back what you say. I'm going to talk about that in a lot more detail in a little bit. And then this sort of lack of spontaneous language. They're very often not initiating, but maybe pretty good responders.
In the video that's below this clip, you'll see, I think, a video that highlights this issue with abstract and non-literal language.
Some other qualitative impairments that you're going to see are issues with pronoun reversal. I'll get into more detail in these so I'm going to kind of go through these quickly. There's this issue with lack of imagination, lack of the ability to play with imagination or spontaneous play. In fact, you often see play deficits for a long, long time. I tell my families not to worry because as their kids get older, play gets more concrete. It gets more, I'm going to play a video game, I'm going to play a board game.
And they also have this inability to use gestures, but also to comprehend gestures. They may misinterpret facial expressions. In terms of the social area, they aren't developing peer relationships. Oftentimes, you'll see individuals with autism engaging-- it's funny, because the kids in my program often engage better with adults. But kids that are higher-functioning often engage better with younger kids. That's why we frequently will leave the kids behind a year.
They don't come up and show you things. There's sort of this lack of spontaneous seeking to share enjoyment. And then there's this lack of social emotional reciprocity. There's this difficulty understanding emotions, but I think a lot of that is tied to the difficulty understanding intonation, which is how we express emotion, and facial expressions. So I think that they would understand emotion, but they have difficulty with the two vehicles for which we convey emotion.
Then oftentimes, people will say, oh, they have lack of empathy. But again, empathy means they have to understand emotions. If you were to walk up to somebody who looked overtly sad and was clearly sad and you just started talking about some very insensitive topic, it would look like you're not empathic, but you're just really having a difficult time reconciling their emotions.
Sarcasm and humor are very difficult for individuals on the spectrum. But again, you have to understand intonation. You have to understand multiple meanings, which are often very difficult for individuals on the spectrum. So take a moment to complete the quiz that's at the bottom of this. And again, see how you did with understanding what we talked about in the lecture. If you ended up not doing so well, go back and review it again, because I think it's really important that you understand the kids that you work with.
DR. JOANNE GERENSER: So now what we're going to do is we're going to talk about the learning characteristics. And this is sort of my favorite topic, because, again, this is information that we think we know about how individuals on the spectrum process the world. And for me, when I work with kids with autism, and I get stuck-- and I don't know anybody that I know that's worked with a kid with autism that doesn't periodically get stuck-- like, why is he not getting this? I don't know why he doesn't seem to understand this. Or why is he engaging in this behavior that's so problematic? I go back to this information, because this information-- and I try and put myself into their shoes thinking about this information. So I urge you to really pay attention to this and think about this. If you're working with kids with autism now, think about the kids that you're working with and how this might play a role in what they're doing.
So the first thing we believe about kids with autism is this concept of stimulus over-selectivity. So what this means is that kids with autism, in theory, don't know what to pay attention to. Oftentimes they're over-selecting on completely irrelevant information, things that actually aren't important to what you're talking about. And the problem with that is that you may be teaching them one thing, but they're paying attention to something completely different.
So they may be paying attention to the background color of pictures and not to the actual pictures themselves. What this does is it impacts generalization. If you're not paying attention to the right thing, then you're going to have a difficult time generalizing.
I'm going to give you a real-life example of somebody that's not on the spectrum, although maybe she is, we don't really know. But my mother, about a year ago, we were driving through a really small town. And she was driving, which is probably my mistake, but she kept running red lights. And I'm like, what are you doing? You keep running these red lights. So she's like, what red lights? And I finally made her pull over. The red lights were actually not vertical, but they were horizontal. And so she wasn't paying attention to the relevant information, which was the fact that there was a red light. She was looking for, in her mind, if the light wasn't vertical, it wasn't relevant.
And so she wasn't generalizing the knowledge of her understanding of what to do to red lights to this town. They have a difficult time seeing the big picture, because if you're not paying attention to relevant information, you often miss what's happening. And again, think about how this impacts on your ability to learn or your ability to function.
They often engage-- as you know, because it's part of the DSM-IV and the DSM-5-- they'll engage in repetitive behavior, stereotypic behavior. And a lot of research into this repetitive behavior talks about how it interferes with learning, or it interferes with your ability to pay attention to the world. And think about this. Just think about yourself. If you're right now, because obviously I can't see what you're doing, so if you're watching this video while at the same time you're playing Words with Friends or doing work on the computer that may be irrelevant to what you're doing, you're going to have a hard time on the quizzes. You're going to end up not doing well, because you're not learning the information I'm talking about. You're, in essence, engaging in self-stimulatory behavior.
And the difference between you and a child with autism is, hopefully, you make better choices. Hopefully, you're not doing those things and that you're actually paying attention to what I'm talking about, because for you, it will be important that you learn this information, and you know that. Whereas a child with autism will engage in self-stimulatory behaviors whenever they feel like it, not realizing how important it is not to engage in those behaviors.
So we know that there's an inverse relationship between self-stimulatory behaviors and learning. If you think about it, if you have high rates of self-stimulatory behavior, then that means it's going to impair your learning. And if it impairs your learning, you're going to acquire fewer skills. The fewer skills you have, it's going to mean you have less ability to learn. The less ability to learn you have, the more you're going to stem. So it's this vicious cycle.
See, if you were sitting right now and I was speaking to you in Russian, and you didn't speak Russian, about three minutes in, you would be engaged in high rates of self-stimulatory behavior, because you don't know what's going on. And no matter how hard you try to pay attention, you're still not going to know what's going on. And we all only have so much tolerance to sit and do nothing.
Last night I went to dinner. I was here, so I went to dinner by myself. And when I go to dinner by myself, I bring an iPad, a Kindle, a phone. I'm engaged in behaviors, because you can't just sit there and stare into space. Otherwise, you're going to start to engage in seriously repetitive behavior. And I was watching somebody just eating, sitting there, and I was thinking, wow, she must have an active internal imagination to just sit there for an hour and do nothing.
Another important bit of information that we have about individuals on the spectrum is that they process the information differently. They process stimuli differently. One of the most important things that we know is that many individuals with autism have a difficult time with transient input. And if you think about that for a second, what do you think the most transient piece of information is that you get? It's speech. It's here. It's gone. It's here. It's gone.
So if you're not paying attention, and if you're having a hard time with transient input, you're going to miss a lot of information. That's why many, many of the children we work with are highly visual. And they do better with visual stimuli because it's less transient. When we work with classroom teachers, we're often saying, write the information down for them. If you're going to tell them their homework assignments, also write it on the blackboard. Give them sheets of information that will help them listen to the lecture. It's often very, very difficult for them to attend and process the transient input information.
They also have a hard time, however, with multiple queues because, again, they don't know what to pay attention to. So if they're getting information in very multiple sources, they're going to have a difficult time processing that. And then there's this difficulty with theory of mind, which I will talk in much, much more detail about in a later lecture.
Processing transient information-- I've kind of gone through these. Issues with motivation is another important information. When a baby is born, and I'm going to talk about this in the next lecture, they develop this ability to understand social positive information very early in life. So by two, three months of age, babies recognize smiles and feel good about it. Babies, within a year or two, understand words like wow, that's great, or I love what you're doing.
We don't believe that kids with autism are responding to social information or social reinforcers from very early on, and then have a difficult time with them, oftentimes, for a very long time, which means they're not responding to natural social contingencies or social reinforcers. What that means is that we have a lot work to do if we're going to understand how they're benefiting from reinforcement.
We have to oftentimes do motivation assessments. If we want our kids to learn, we have to know what they're going to be motivated by. And if you think, oh, I can use whatever I used with my last student, you're probably going to miss the boat. The one thing we know for sure is you're not going to learn without a reinforcer. That's the key to effective learning. So pay attention to what motivates your children. And there's a lot of information available on how to assess motivation and preference assessments in children with autism.
Another important thing that we know is that kids with autism aren't just picking things up from the natural environment. They're not just paying attention to their peers. It's one of the issues we have with just putting kids into inclusion settings. If you take a child and you just put him with his typical peers, is he going to benefit from it? And the answer to that is for many children, no. We have to teach them how to learn from their peers, which is why many children start in a one-to-one setting maybe in their home or in a segregated environment. And then we quickly transition them once they learn how to learn from their natural environment.
And lastly, I think an important bit of information is that children with autism are not really delayed in their development. I mean they are in many cases. But we would describe it more as disordered. And the reason we say that is that their profile is all over the place. So you might have an individual who talks in five-word utterances with an IQ of 120 who has a difficult time with toilet training or with skills that should fall below that. And that's important for us to know, because standardized assessment tools are going to be very meaningless because we often have to stop after we get three incorrect. But then oftentimes if we kept going, you're going to see that they actually know things up here and things over here. So it's important for you to pay attention to the learner's profile, because you want to know what their strengths are, what their limitations are.
But if you start at the highest level and assume everything is at the highest level, you may be wrong. And they may be missing a lot of information. And if you start at the lowest level, you may be starting far too low, where they actually have a lot of the skills that are above what they know.
And so oftentimes what this means is that kids are memorizing things. But they don't often comprehend what they memorize. So you think, oh, they know all this stuff. But four weeks later, five weeks later, they're unable to actually apply the information. You're going to see serious generalization problems from one environment to another environment. And so understanding these learning characteristics will help you problem-solve as you're working with kids on the spectrum.
If I have a child, for example, who learned to identify apple-- the picture apple-- and then he learned to identify the picture shoe, but then later I show him an apple and he can't discriminate it, it's probably because he was not paying attention to the actual apple on the picture. There was something irrelevant that he used as a queue to be able to have him label this picture.
So I have to be very, very smart about the stimuli I use and really carefully assessing what his learning characteristics are going to do to the way he or she is actually learning. Again, here's your quiz. And take some time to take it. And hopefully, you weren't stemming during this lecture, so you paid attention.
DR. JOANNE GERENSER: Let's talk now about specific language differences in autism spectrum disorders, in terms of areas that are very unique, oftentimes, to children on the spectrum and what those language deficits mean to individuals on the spectrum. So first, we're going to start with echolalia. And I'll spend a little bit of time talking about this because, for many people working with kids on the spectrum, this often challenges them for a while.
There are two different types of echolalia. There's immediate echolalia, which is very much what it sounds like. I say, hi, Johnny. How are you? And he says, hi, Johnny. How are you? So he basically repeats back, or she repeats back pretty much what I say.
The other echolalia is delayed echolalia. So this could be things like a child could say, do you want a cookie? when he wants a cookie, because somewhere days, weeks, hours earlier, somebody said, do you want a cookie? And a cookie miraculously appeared. Or it could be what some people refer to today as scripting, which is where they repeat back videos, TV shows, conversations that they've heard weeks, hours, in some cases, years ago. But the point is it's repetition after a significant delay.
Mitigated echolalia is not really-- the term isn't used much anymore. But it's where they're repeating back what they heard but not exactly. So they may delete words. They may use their own intonation. Restructured imitation is something that we used to use to describe mitigated echolalia. So it's very similar.
You'll hear terms-- "echoic behavior," for those that are much more in the behavioral world, the Skinnerian world, where it's echoing back. It's part of normal development. Typically developing children go through a stage of echoic behavior. And it's part of-- when you're working with kids with autism, you will teach echoics. You'll teach them to imitate speech.
Metaphoric speech is what we would use to talk about when they're actually seeming to use echolalia but contextually relevant or contextually appropriate. So the child who says, do you want a cookie? when he really wants a cookie is using his echolalia in a contextually relevant time.
Now echolalia is very much consistent with autism. But there are some other populations. Sometimes we see it in adult aphasics. Or post-epileptic, you might see it for a brief period of time.
You see it in typical development. I work with a very young staff. And many of them are having babies. And they work with kids with autism. So they're like hawks watching their children's development.
And there is a typical stage where typically developing babies will start to echo. And they're like, oh, my God, my child's echolalic. It's a normal stage. The problem is that for kids with autism, it persists. It becomes extremely predominant.
There's a lot of, still, unknowns. It's funny because I was updating this course. And I was trying to find very new literature on echolalia. And I didn't find very much, which I find interesting because it's still a very, very interfering, difficult thing for some of us to work with. And it doesn't appear to be an overly researched or overly interested area. And so there's still a lot of unanswered questions.
In some cases, we see that, as the echolalia decreases, the child's typical language or appropriate language increases, which would make sense. In some cases, the echolalia seems to be environmentally or situation specific. It only occurs at certain times and in certain situations, maybe if anxiety goes up or if the situation becomes too difficult.
Some have viewed echolalia as being a positive prognostic variable or indicator. And others see it as very interfering and not really a very positive thing. I look at it like, if you have something to work with, it's a lot easier than working with nothing and trying to establish it to begin with.
So again, some people view echolalia as positive and functional. And in the old days, the behavior analysts saw it as undesirable and problematic. Obviously, we kind of now know that the answer is in between. Some echolalia is very positive and prognostic of good things and functional. And some is interfering.
If you have a child who's engaging in repetitive TV talk all day long, you know what I'm talking about. That is not going to be helpful. And it's going to be significantly interfering with their ability to function.
So the answer is not one or the other. It's in the middle. And it's our job as good therapists to do an analysis and say, what's functional, and what's not? What should we build on? And what should we work to reduce or even eliminate?
The old theories were that echolalia was, in the psychoanalytic world, this expression of anger or hostility, which we kind of recognize is not really very relevant. It does appear, though, that some of the old work is relevant. So we do think that kids are echolalic because they lack other responses. We know that because as we teach more appropriate responses, the echolalia goes away.
But if we-- so for example, if I taught a child to answer his name, and I said, hi, Johnny, or I said, what's your name? and he said, Johnny, it's not echolalic. But if I said, who's the president? and he doesn't know the answer, he might revert back to, who's the president? So you can see that it's an absence of alternative responses.
It does also appear consistent with poor language comprehension. And we know that some echolalia is actually self-stimulatory. And a more complex way to say self-stimulatory is to say non-socially mediated automatic reinforced behavior. It's just another way of saying self-stimulatory. And it may have to do with cognitive processing limitations or some type of interactional variables or variables that are in the context.
Again, in typical development, we see it very briefly. It's referred to as echoic behavior. But by 28, 30, 34 months of age, it's gone. But in autism, it persists. It just keeps going.
Again, echolalia and echoic behavior look the same in early life. It does increase. A baby will be more echoic with novel stimuli. It will increase with novel situations.
But for typically developing children, it does not persist beyond two and a half, three years of age. And it does differ in quantity. You're not going to see anywhere near as much.
So now I want to just take a few minutes to talk about what we do, how we treat it. There are very different ways of looking at echolalia. So there are the functional approaches, which come more in the SCERTS or the Developmental, Individual Differences, the DIR. The developmental approaches would look at echolalia as much more functional.
Then, there's the behavioral treatments, which, again, doesn't eradicate or eliminate the idea that some echolalia is functional. But we just, as a behavioral approach, we wouldn't look at-- and I tend to be more in the behavioral world, which is why I use the term "we." We tend to look at echolalia as trying to identify the underlying function, and that not all of it will be functional.
So in terms of the functional approach, they're looking at-- again, I refer to Barry Prizant and Amy Wetherby and the people who developed SCERTS because they're kind of the people who have looked at it the most and published the most on it. Again, it's not all that new, the research. But it's what's available to us.
So Prizant and Duchan and Wetherby had looked at children. And they found in their research-- but again, they only looked at four children. But they found that of all of the echolalia that they looked at, only about 4% of it appeared nonfunctional.
And I'm not sure. I can see that as the case. But this is how they looked at it. And they developed this whole intervention based on the idea that a large proportion, almost 95%, of the echolalia that you see in children is functional.
And what they did when they were looking at immediate echolalia was they identified seven possible functional categories. So they, for example, thought it would be to indicate yes or no. Or that the child was rehearsing. I need to rehearse the words in my head.
Or I'm requesting. So I say, do you want a cookie? And the child says, do you want a cookie? But he really wants a cookie, so he's requesting it.
Declarative. Again, you can look at these. Taking turns, self-regulatory. And then, non-focused is what they would use for nonfunctional.
They basically talk about, well, how do you know what the function is? So they talk about looking at the gaze, looking at the body orientation, looking at the way the child says it, the volume or prosody. Is there an accompanying gesture?
So for example, if I say, do you want a cookie? and the child says, do you want a cookie? but reaches for the cookie, that might mean that it's, I want the cookie. It's either yes, no, or a request.
And what they talk about for their treatment-- first of all, they say never, never, never punish the child. Never ignore the child's behavior. And again, punishment is a very, very loosely used term in my humble opinion.
Punishment simply means that you're doing something to reduce the frequency of a behavior. Don't confuse punishment with aversives. I suspect that everybody, at some point or another, uses punishment. What's important to know is that you actually are using it, that you are actually doing-- so for example, if you say, no, you can't go to the playground, it's punishment. If you say, I'm going to put this behavior on extinction, that's punishment.
So there are times in a more behavioral approach that we would punish, if you want, echolalia behavior by, for example, removing a token. But we're not going to be using aversives. We're not-- so but in the functional approach, remember, they don't believe that much of echolalic behavior is self-stimulatory or non-useful.
And they really believe that you need to attend to and reinforce the echolalic behavior as functional, as attempts to communicate. And so their perspective is simplify your language to make their comprehension easier. And respond to all of their echolalia as functional, as having communicative intent.
Now behavioral approach is different. Their perspective is that, you know what, some echolalia might not be functional. And that nonfunctional echolalia might actually interfere with the development of new skills. It can certainly interfere with social interaction.
I mean, if you're three years old, and you're in a daycare center, and another child runs up and says, hey, my name's Johnny. What's your name? And the kid says, hey, my name's Johnny. What's your name? That's not going to win friends and influence people. Lots of times, kids are like, wow, what's wrong with this kid?
So there are reasons why we think echolalia may not be something overly functional in all cases. But to assume it's all nonfunctional, again, is throwing the baby out with the bath water. But what we want to do is we want to do a functional assessment, determine what's functional and what's really simply self-stimulatory.
And then, there are different ways in which we would go about treating it. One might be to teach functional equivalence. Give the child something more appropriate to say in a situation where we know that he's being echolalic because he doesn't really know what to say. Teach the child, for example, to say, I don't know. Rather than if I say, what's this? the child will say, what's this? But rather than doing that, we teach them to say, I don't know.
We would use what's called a stimulus fading. I would provide a verbal prompt and use a stimulus fading procedure. So for example, I might say, what's your name? Say, "Johnny." And I would say "Johnny" much louder. And then he would, hopefully, repeat "Johnny." And then I would fade the prompts.
Or we would use what's called a cues-pause-point, which is an approach developed by Richard Foxx and some of his colleagues, where you're actually providing the cue, pausing, and then pointing to the child. So the child learns to answer when he's pointed at so that there's a moment for him to process the prompt. And we work on eliminating the word "say" because, oftentimes, kids echo that.
Marjorie Charlop talked about actually using echolalia in learning, so this concept of mediated generalization where the child actually does use the echolalia as a rehearsal. And what she found was that she can actually use echolalia to enhance the skill acquisition, particularly in word learning and in object ID.
So here would be an example where the child is actually requesting. So if I were using a functional approach, the child says, do you want popcorn? And the-- I mean, the therapist says, do you want popcorn? The child says, do you want popcorn? while reaching for the popcorn. Me, as a functional therapist, I would say, "want popcorn," because what I want to do is give the child something more appropriate to echo that I can then reinforce. And again, if I were a behavior analyst working with a child with autism, and I said, do you want popcorn? and he clearly wants the popcorn, I would do the same thing. I would try and provide him with a more appropriate statement in the natural environment to echo that I would then reinforce.
Here's an example of, what's your address? The child doesn't know his address. I know he doesn't know his address. So I'm teaching him a functional equivalent.
So I'd say, what's your address? Say, "I don't know." And he says, "I don't know." And I reinforce it.
And then, I fade, say, I don't know, eventually. So I say, what's your address? And he says, I don't know. And I would use these various prompts in order to teach him in the same concept.
Now let's talk about delayed echolalia, because I think immediate echolalia is a little bit easier to understand, assess, and treat. Delayed echolalia becomes very complicated. Oftentimes, when I'm doing a consultation or I'm interacting with staff, they'll talk about the fact that when I say, well, what's your most difficult challenge? They bring up the child who's doing a lot of video rewind or scripting, as they like to call it.
And they have a really hard time figuring out how to reduce this. It's an extremely difficult behavior to treat, delayed echolalia. And again, we would look at delayed echolalia very much the way we would look at immediate echolalia, which it's a continuum. Some of it is non-communicative and nonfunctional. And some of it might be very communicative and very functional.
And very much like immediate echolalia, there's a range of treatments. So Prizant, Rydell, and Wetherby will look at most of it as being functional and communicative. Some would look at it as being self-stimulatory or automatically positively reinforced. And others would look at it as having multiple functions. Maybe it's actually escape-maintained. Maybe, I'm actually trying to work with Johnny, and he's trying to get rid of me.
I used to do this with my brother in the back of the car on long road trips. My brother would annoy me. And so then I would start the whole-- my brother would say, why don't you give me that? And I'd go, why don't you give me that.
And then, he'd go, stop mimicking me. And I'd say, stop mimicking me. And then he would leave me alone because I would annoy him so much.
So we have to be very smart about how we're looking at delayed echolalia and assessing the functions, because it might actually be escape-maintained. It might be attention-getting. It might be socially, automatically reinforced or self-stimulatory. And it might be functional or communicative.
Now it's interesting because Prizant and Rydell took their seven functions for immediate echolalia and turned it into 14 functions for delayed echolalia, which I think has to be pretty overwhelming if you're trying to assess the function. And again, you can read these. It ranges from rehearsal to calling somebody or practicing or directive. But I think it would be very complicated to actually distinguish these.
And again, what they expect that you do is that you carefully assess the functions, try and determine-- I'm just going to go back for second. Try and determine which of these it falls into. Look at whether it's self-initiated or respondent. Did it happen because they just picked it out of the natural environment? And their perspective is that if you look at it, it will give you some information about their emerging language skills. And their treatment is very much the way they would treat the immediate echolalia, respond functionally, assume that there's a communicative intent, try and respond to it based on one of the 14 functions that you identified and placed it into its category.
Now if we look at a functional assessment, which is what a behavior analyst would do, what you're going to end up finding is that it's very likely that some of it is self-stimulatory, some of it is escape or protest, and some of it might be functionally communicative. So here's a child-- every time I hold up the camera for some of my kids, as soon as they see the camera, they go, say cheese. That's delayed echolalia. But it's functionally relevant. It's not really communicatively appropriate. But it's functionally relevant.
Or here's a kid. I used to work with this kid. And when I would sit down to work with her, I can't say she loved working with me. She would go, say goodbye, Barney. And she was basically saying to me, I'm done. I want you to leave, because this video that she used to watch, at the end, they would all say, say goodbye, Barney. And then the video would end. So I would respond to that by giving her a more appropriate way to try and end the session.
But my functional assessment was very clear that these were very communicative delayed echolalic utterances. I would rather she say, say goodbye, Barney, than hit me or kick me, which was her alternative to end the session. So if I were just to ignore that, I would miss a real good opportunity to teach her to be more appropriate with her language.
Now if your functional assessment reveals that it's escape-maintained, then you want to do functional communication training. And so I want to teach the child, like the one where it says, say goodbye, Barney, to be more appropriate in her functional use of language.
If my functional assessment reveals automatic reinforcement, now I have my work cut out for me, because think about it. In automatically reinforced behavior, you, as a therapist, do not control the reinforcers. They're in the kid's head.
The child controls the reinforcers. He has access to them all the time. It's like he won the lottery and has $100 million in his head, which means he can buy whatever he wants. He doesn't need for you to give him anything. And that's what makes it so difficult because his reinforcers are available to him all the time. And he doesn't always have the ability to make good choices.
I have a young man, for example, that I've worked with for years. And he's now-- well, now he's in 10th grade. But when he was in eighth grade, I went in and did an evaluation because he was doing well in some of his classes but very poorly in others.
So for example, he was doing very poorly in his religion class. He was in a Catholic school. So when I talked to him-- he was very high functioning-- I said, what's up with religion? Like, why do you keep failing all of the quizzes and tests?
And he says, Joanne, truthfully, as soon as the teacher starts talking, I start thinking about World Federation Wrestling. And all of a sudden, it's the end of the class, and she hands me the quiz. And I don't know what she talked about in the lecture. And I said, but don't you understand that if you're thinking about World Federation Wrestling, you can't be thinking about what she's saying?
And he goes, I know. But I'm not interested in what she's saying. And I'm interested in World Federation Wrestling. So his ability at that moment in time to compete, he just can't do it.
So what we had to do with him was literally, he wore a JTECH device, which was a device that we could actually trigger to vibrate. And you could actually see when he starts drifting off. He's not looking at the teacher. We would vibrate his device. And that was his, I have to pay attention.
So we needed to develop a prompting system to force him to attend to the information because, for him, he could not-- the self-stimulatory motivation was far greater at that moment than paying attention to his religious instruction. And so treatment becomes unclear because the reinforcer is unclear. We don't know what to provide reinforcement.
So again, I'm just going to briefly go over some strategies. But my recommendation for those of you working with kids on the spectrum, if you have a child that's engaging in high rates of delayed echolalia or self-stimulatory, repetitive use of TV talk, you need a behavior analyst to work with you because it is very complicated. But if you don't address it, they're really going to have a time learning information. And it's going to interfere with their ability to develop social relationships. So it really does need to be treated.
First thing is you want to try and identify their preference for stimuli, because what we're going to do-- when we treat automatically self-reinforced behavior, we want to compete with their sensory consequences. We want to do a sensory matching if possible. If you're really interested in this, you can read some of the work by Cathleen Piazza, because she talks a lot about non-contingent access to the same information or the same sensory stimuli. So we're reducing the self-stimulatory behavior. I'll give you a very simple example.
If you have a child that engages in, let's say, finger play because they like the way their fingers feel together, you might actually block that finger play by having them wear a glove or gloves. And again, I wouldn't do this without really working with somebody. But then, when they're not engaging in this-- and they shouldn't want to engage in it because they're not getting the self-stimulatory behavior. When they're not engaging in it, you give them access to something that feels just as good.
Now with self-stimulatory talk, it's far more complicated, because what is it that they're getting? What is it that they like? Do they like the sound of it? Do they like the content? Do they like just talking?
And so what we would do would be to try and do a preference assessment to determine which of these three areas is primarily their motivation. Do they just really like-- so if, for example, you provide them with non-contingent access to their preferred books and videos, but you don't let them have the volume, then it might be the content. Meaning if you see their self-stimulatory behavior go down, they might just like the content. And they're bringing that content back every time they talk. But if you see high rates of self-stimulatory behavior while they're watching their videos, it's probably not the content that they're enjoying but actually just repeating the information.
And so what you're going to try and do is provide them with a sensory match and redirect all their echolalic behavior, redirect all their self-stimulatory behavior. The other thing, obviously, is the more structure you provide a child, the less likely they're going to engage in these self-stimulatory behaviors because they're too busy. And so that's why when we start with young children, we're often working one-to-one because it's very difficult to work with kids who engage in high rates of self-stimulatory behavior outside of a one-to-one.
The other thing I tell parents all the time now is delayed echolalia is not in the DSM. If you go back and you look, it's not part of the diagnostic category. But the reason, I think, kids do it is because this desire to repeat behaviors is-- and so years ago, 25, 30, 35, 20 years ago, when I started working with kids with autism, they weren't rewinding videos because they didn't have the ability. Instead, they were watching commercials over and over. So they would often repeat commercial talk.
Today, it's videos because they find a section in the video that they really like, and they rewind it, and they rewind it, and they rewind it. So I tell parents all the time, if you can avoid letting your kids discover the DVR, you're going to be ahead of the game. Let them watch live television because at least they're not going to get too caught up in, I'm going to rewind this, I'm going to rewind this, I'm going to rewind this.
Last thing, I want to talk a little bit about deictic terms. Again, this is more of a speech pathology term. But it's more than just the pronoun reversals. Deictic terms, "I," "you," "this," "that," "here," "there," are terms that change depending on who the speaker is and who the listener is.
So if I say, get me this right here-- and I'm talking about the computer. I say, get me this, and you're on the other side of the room. You would say, what? You want me to get you that?
Imagine how complicated that is for a child with autism. Is it a this? Or is it a that? Are you here? Or are you there? And in order for you to really understand deictic terms, you have to be able to understand perspectives. You have to be able to know-- and this is very difficult for kids with autism.
And so I think this whole area of theory of mind and perspective taking are the primary underlying variables that we're going to have to think about when we start thinking about teaching deictic terms. I did a consult in one of my speech departments just about a week ago. And the first thing they said to me was we've got this real problem with teaching "I," "you," "me," "you."
And I'm like, oh, my God, I remember those days when I used to work with kids with autism. It's really hard because you say, touch my shirt. And they touch their own shirt. No, no, that's your shirt. I want you to touch my shirt. So you can see how really difficult it is in order to teach that. And so we may want to think about teaching the underlying variables of perspective taking and theory of mind.
The other area of-- oops, I'm going backwards. The other area that's difficult is this whole issue of prosody. So what prosody is is suprasegmental aspects of speech-- intonation, volume. So how I say, wow, that was really cool, is an example of intonation or prosody.
And it's also a very under-researched area. Yet it was discussed by Kanner back in 1943. So it's been part of the autism spectrum characteristics from the beginning. And yet there's not enough written about it to help us as clinicians to really understand it.
And there's different aspects of intonation. There's what we call affective stress. How does the person feel? Like, if I were to say, oh, that's, what he did. That would demonstrate sadness.
There's stress. I want that cookie. Or there's syllabic. That changes the meaning of a word. Like-- I can never think of one. But if you put the intonation on the first syllable, it means one thing versus the second syllable.
Take the word "really," for example. If I say, "Really?" that means, how cool is that? If I say, "Really?" it means I don't believe you. "Really?" I'm shocked. "Really?" I'm delighted. "Really?" I'm telling you the truth.
If you take the time-- take a second, and actually try that out. I said the same word, but I just changed the way I said it. People with autism would think that meant the same thing every time I said it. Yet I changed the meaning completely. It's very difficult to function in the world if you miss what people are saying because of the way we're saying it.
We often can mislead people if we're using intonation and we don't understand it. Or we miss the entire meaning of the utterance. It's very difficult for people who have high-functioning autism because we don't necessarily give them a break. Remember, if you're working with people with high-functioning autism or Asperger's, some of them might not even be diagnosed. These are individuals who are very bright, have large vocabularies, but often respond in ways that puzzle us. Like, why would he say that? Because he missed the intonation, the prosody or maybe the gesture that goes along with it.
The other piece is their use of intonation. Many of them may have flat intonation, may sound a little bit more monotone, if you listen to some individuals. And one of the things we know is that we judge people by the way they speak.
My board chair is from India. I have a really difficult time understanding him when we're on the phone because I'm not getting all the other information. I'm just hearing-- and the reason why is because the language he speaks-- he's a very good English speaker. He's been in this country for years and years and years and years. But intonation in Indian languages is different. It's opposite of intonation.
So he tends to use the intonation of his native language on English. So it makes the words often very difficult to understand. So we may judge individuals on the spectrum as being less competent because they lack the appropriate intonation. If you take a look at the video that's at the bottom, you'll hear two individuals speaking.
And you'll really see what I mean by the differences in prosody. One young individual is much more monotone. Or he's making an effort to use prosody because he was taught how to use it. But for us, it comes naturally. No one taught you when to put intonation into an utterance. You just did it.
So take the quiz at the end of this lecture. And hopefully, you did well. And hopefully, you did well on all the quizzes. And don't forget to participate in the discussion. And I hope you enjoyed the lecture.
Think of one of the learning characteristics discussed in Segment 4 and discuss how you think this specific characteristic could affect a learner with autism in the natural environment.
Post a minimum of two (2) entries per question. You should make one post answering the question and one post responding to a peer.
Submit your posts to the Discussion Activity 1 forum.
Using the Internet, locate a news article or YouTube video that discusses the impact of the new DSM V. Upload the news article or a link to the video and write a paragraph that provides your own perspective on the information.
Complete and submit this assignment to the Assignment 1 Drop Box.